2003
Steven
is 18 years old now. He
is getting MOVICOL
under a medical supervision now. It is a powder with lemon taste against
constipation. It should be solved in water to make a drink. However,
we also have made good experiences with mixing it into yoghurt. Ever
since he has regularly, almost daily bowel movement without enema. |
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Although
it has got much better since the treatment with MOVICOL
started, Steven sometimes is very tired in the morning because he hasn't
slept enought. At those nights you can hear him laughing and shrieking
with delight in his bed. |
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Steven
still doesn`t walk. But he has a new game: FISHING...
with a rope or towel or whatever can be thrown onto a table (or something
like that) to get things pulled down from it. As you can see in the
picture he is very skillfull in that. |
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When
he was successfull in FISHING he always is very happy and giggles a
bit. Therefore you simply cannot be angry with him. |
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Still
one of his favorite things is crackling and rustling with plastik bags
or paper. Most of the time he ingnores his birthday or christmas presents
at first. The gift-wrapping paper is muuuuch better ! |
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All
kinds of noises are interesting. For instance he here is bouncing two
toys together, while holding one toy with his teeth. Also works great
with a spoon ( ...try it ;-) |
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Because of age now, Steven has to have at least one attendant by law to take care of all his "normal living" needs. As his parents we (of course ?) have been ordered for that by the guardianship court now. That means that we are completely responsible for him and have to write a report once a year. Addittionally to that the care supply (feeding, washing, getting dressed, medication,.... ) was also delegated to our responsibility. So this year brought a lot of changes in legal regards,... but in normal live there really is not that much of a change :-) |
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