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The intellectual and physical development of children with CDC-syndrome is extremly variable. In older documents a far more negativ picture of the development is drawn as it really shows today. There seem to be reasons for this:
· insufficient statistical
recording ( mildly affected cases not always recognized as CDC)
· cases almost exclusively outside the family (institutions)
· no or insufficient early intervention programs
In the recent years a growing number of CDC cases have been identified who are
only mildly affected:
· less distinctive cry which often disappears in the childhood
· less physical problems
Some even meet the "milestones
of development" within the standard time and walk at 1 -2 years of age.
These mildly affected children learn to speak very well but nevertheless still
need speech therapy. In quite unusual cases they even can learn to read and
to write.
The following table compares the milestones of the average development of CDC
children with the typical normal development:
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| Smile |
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| Laugh |
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| Grasp objects |
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| Roll over |
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| Pull to stand |
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| Reach objects |
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| Crawl |
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| Sit alone |
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| Transfer objects |
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| Babble |
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| Discover surrounding |
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| Say 1st word |
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| Understand directions |
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| Walk alone |
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| Toilet trained |
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| Dress self |
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A small percentage of children
with CDC don't walk , don't speak and some have serious medical problems with
a reduced life-span. However it seems that the majority, despite a number of
persistent minor health problems, thrive and live well into adulthood.
They generally walk between 2 and 6 years of age and partly speak well enough
that the family and other familiar persons understand most of their communication.
However, the best course of action for carers is the optimization of the childs developmental potential:
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