Steven`s Guestbook

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 Einträge: 74 | Aktuell: 24 - 1Neuer Eintrag
 
24


Name:
Michelle Meyers (meyersnotmyers@yahoo.com)
Datum:Do 22 Nov 2007 22:33:55 CET
Betreff:ever so helpful
 I am a student who is currently working on a biology project about cri-du-chat sundrome, and though I was able to find information elsewhere, your site has been especially helpful, and touching. Thank you for putting your story out into the world.
 
 
23


Name:
delphine. (delphine.deichtmann@gmail.com)
Datum:So 28 Okt 2007 01:48:10 CEST
Betreff:Happiness
 Just a few words to say that I'm very impressed by your story. Everyday life may not be always easy but you are a happy family, that is what matters. It's very comforting to see that Steven is happy and that you are happy too. Just go on like that, it's fantastic !!! Special greetings to Steven of course :)
 
 
22


Name:
Sally Grube (sdgrube@earthlink.net)
Datum:Do 30 Aug 2007 16:04:20 CEST
Betreff:What a beautiful family!
 Dear Steven: You and your family are absolutely wonderful. I have a 12 year old daughter in the United States who has Cri du Chat syndrome, and she is my role model for everything that is meaningful in life. She touches everyone she meets in such beautiful ways, and it is an honor and a privilege to be her mother. I have 5 children in all, with Heidi being my youngest, and the only one affected by 5p-. She has a de novo terminal deletion at 14.1 on 5p. Thank you so much for sharing your life and your story with the world. We are all ambassadors of people with different abilities to our world, and your website does a great service of educating all people of not only the syndrome, but the humanity that we all share. Many, many thanks, and best wishes to you and your family.
 
 
21


Name:
Joyce Safi (joyce.azar@gmail.com)
Datum:Do 21 Jun 2007 14:34:21 CEST
Betreff:Good Luck Steven
 Hello Steven, I was so touched when i saw your website and wanted to tell you how great you are to share your story with other people... My daughter who is 5 months now has the cat cry syndrom and we are waiting to see what exactly we are dealing with. The assessment will take place next month and I am praying so hard that she will be fine. Meanwhile, take good care of yourself and keep the good job of updating this website. I send you my warmest regards. Joyce
 
 
20


Name:
Joshua (joshuarcampbell@email.com)
Datum:Mi 20 Jun 2007 01:23:18 CEST
Betreff:Thank You
 Today I found out that my 2 week old nephew has the same condition as Steven. I want to thank you for sharing the details of your wonderful son with the world. I don't know why but reading your diary comforted me so much.
 
 
19


Name:
Jessica Rogers (jess192@hotmail.com)
Datum:Mi 16 Mai 2007 21:16:47 CEST
Betreff:You are an awesome mom!
 As I read this, I can't stop thinking about how dedicated and you are. Steven may have a harder life than most, but he was gifted with having a family that cares for him as much as you guys do.
 
 
18


Name:
Morgan Smith (rhyleighgirl@yahoo.com)
Datum:Di 15 Mai 2007 19:03:24 CEST
Betreff:aweosme!
 this website is amazing.. im doing research for biology, and this syndrom isnt at all depressing. its uplifting to see these children and adults to overcome their dieseas (sp)!! ~morgan.
 
 
17


Name:
Alec Entress (Banana.1994@hotmail.com)
Datum:Di 08 Mai 2007 03:09:05 CEST
Betreff:Thanks you
 I am doing reserchon Cri du Chat and this helps VERY much by putting things into prospective
 
 
16


Name:
Jeanie (cotejean@msu.edu)
Datum:Do 19 Apr 2007 01:12:52 CEST
Betreff:Greetings!
 Hi, I am finishing up my first year of medical school and we are currently studying genetics which includes cri-du-chat syndrome. Thank you so much for taking the time to share your story with me and the rest of the world. It helps remind us future doctors that it is people we treat and not cases. I look forward to staying updated with you and your family! Jeanie
 
 
15


Name:
Rafael (grasanul101@yahoo.com)
Datum:Fr 09 Mär 2007 00:25:17 CET
Betreff:I am humbled
  It took me awhile to even start forming an answer... after all what can I say about things I know so little about? The syndrome has attacked Steven in every possible way; it takes a great deal of effort, work and sacrifice to bring the quality of his life to the outstanding levels seen. This website is real food for thought and the people who have nothing to learn from here can be counted on one hand or two. The fact that it's a good resource on a rare syndrome is, of course, secondary. Tell Steven he's a great teacher, no less for having to depend constantly on his also-great assistants.
 
 
14


Name:
Payam (pt1986@googlemail.com)
Datum:Do 08 Mär 2007 16:00:45 CET
Betreff:Danke Schon
 Thank you for your wonderful website. I came across it while looking for more information about CDC and it really helped me understand better.
 
 
13


Name:
Alex (pinkblue_skye@yahoo.com)
Datum:Do 01 Feb 2007 04:00:41 CET
Betreff:Steven
 I was searching for information about the cri-du-chat syndrome when I came to your site. Your are an inspiration to all parents who have children that are physically disabled. It was wonderful to see Steven's progresses as he learned new things...I only hope that he will continue to grow beautifully and be nurtured with all the love the world has to offer. I hope that in hard times God will personally send an angel to inspire you once again. Blessings.
 
 
12


Name:
Rebecca from America (ucfnurse2007@yahoo.com)
Datum:So 28 Jan 2007 03:29:44 CET
Betreff:what a blessing you are as a whole family!
 I am a senior nursing student looking for information for a paper I have to write. I came across your site. I just wanted to tell you that I believe you are all so blessed to have each other. Thank you very much for sharing your story! Take care, Rebecca
 
 
11


Name:
Jaylan from Egypt (joly16_blackpearl@hotmail.com)
Datum:Do 11 Jan 2007 14:36:19 CET
Betreff:Diaries of an angel
 I found your page as I was searching the web for information about different syndromes I never thought it could be so wonderful to raise a handicapped child, your diary is full of strength, hope & happiness.I hope God will bless you & your family throughout all of your lives
 
 
10


Name:
Jan Stone (jstone@fortsmithschools.org)
Datum:Do 11 Jan 2007 05:22:52 CET
Betreff:What an inspiration
 My daughter is a Kindergarten teacher and has a child who has Cri du chat syndrome. We were researching to find out what it was, what to expect, and what she could do to make her educational experience successful. We found your website. I am a special education teacher and through my 33 years of teaching I have seen many children who are lucky to have been born into their families and many who are unlucky. Steven is lucky to have such a supportive family and you are lucky to have him. God handpicks parents and siblings for his special angels. Continue to realize your blessing. Thank you for the time you have put in on this website. The lives you touch will be helped enormously and so will you be blessed. Thank you again.
 
 
9


Name:
Alexis J. (caramelchica920@yahoo.com)
Datum:Mi 10 Jan 2007 22:59:21 CET
Betreff:This is amazing
 While looking at random pages online I found this site and I am so amazed and inspired by Steven's story...he is lucky to have parents who do so much to help him, and his story is so inspiring. I wish you and Steven good luck in everything you do! Thank you so much for sharing your story!
 
 
8


Name:
Kristine (@clariah2@shaw.ca)
Datum:Sa 23 Dez 2006 01:14:19 CET
Betreff:Thanks for sharing
 Thanks so much for putting Steven's diary on line. I can relate to so much that you have shared. Our daughter also enjoys horseback riding, swimming, music, crinkling paper, and .... tasting a bit of nature. We learn so much from these special angels in our care. Blessings to your family this Christmas and happy travelling in your new motorhome!
 
 
7


Name:
Erik %26 Marci Cheesebrough (emqfamily@comcast.net or erik@xkl.com)
Datum:Fr 15 Dez 2006 22:56:54 CET
Betreff:Quinlin Marine Cheesebrough
 Hello. My wife and I have a daughter, Quinlin, with Cri-Du-Chat. She is 8 years old now. We can understand a lot of the issues you discuss in your diary. Quinlin is not affected to the extent that Steven is. She has been walking since she was around 4. Actually, it is more like stumbling. She is very clumsy and does not pay attention to her surroundings. Quinlin has a feeding tube which she has had since she was 3 weeks old. She eats most of what she needs now but she still needs to be tube fed once a day to add some calories. She is partially potty trained but we really need to pay attention to how long it has been since she last went. As far as #2, it's about 50/50. The Cri-Du-Chat specific symptoms she has include poor muscle tone, developmental, motor and speech delays, microcephaly, and hyperactivity. You, or anyone, who has questions about our experiences with the syndrome can feel free to email us. Also, I post lots of pictures here: http://www.flickr.com/photos/94392844@N00/
 
 
6


Name:
Karina from the Philippines (karinaysabelnario@yahoo.com)
Datum:Do 14 Dez 2006 10:42:36 CET
Betreff:Hello!
 I am a college student taking up Psychology. We discussed the cri du chat syndrome in our Zoology class just today, and I am glad to have found your story. I hope you continue! :)
 
 
5


Name:
Mia from Bulgaria (cheshire_cat@abv.bg)
Datum:Do 07 Dez 2006 11:13:21 CET
Betreff:Thanks for the story of a child with wonderful parents
 In my country a person with a cri-du-chat symptom would be locked in an asylum and the society would notice him only once a year (during Christmas time usually). I wish every handicapped child could have the luck with parents like you, who would provide him with all the love, care and attention he needs.
 
 
4


Name:
Andrew H. (andycanadatoronto@yahoo.ca)
Datum:Mi 06 Dez 2006 03:29:37 CET
Betreff:...
 I found your page randomly while surfing on-line, and I'm so happy I did. Your story is beautiful and inspirational. You are an angel.
 
 
3


Name:
Neil Melancon (NeilM@lfbf.org)
Datum:Di 05 Dez 2006 17:24:44 CET
Betreff:Thanks
 Thank you for sharing that with the world. I offer my thoughts and prayers for your continued successes with Steven.
 
 
2


Name:
Ravensara Travillian (ravensar@u.washington.edu)
Datum:So 03 Dez 2006 06:59:42 CET
Betreff:Danke!
 Ich fand Ihre Website beim Suchen nach Informationen über Katzenschreisyndrom. Vielen Dank für das Teilen der Geschichte Stevens--es war sehr ergreifend.
 
 
1


Name:
Marion, Mike, Steven and Uwe (webmaster@criduchat.de)
Datum:Fr 01 Dez 2006 15:15:05 CET
Betreff:New Guestbook
 Hello, we had to create a new guestbook (because the old one will technically not be supported anymore by the provider :-(( We hope that the new one will be used as often as the the old one was used. We are looking forward to the new entries.
 
 


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